The Kentuckiana Fibromyalgia Support Group supports many advocacy efforts for the rights to appropriate and quality healthcare for chronic pain conditions and those suffering with them.
URGENT: CALL TO ACTION
Background: In 2010, the National Institutes of Health (NIH) contracted with the Institute of Medicine (IOM) to undertake a study and make recommendations “to increase the recognition of pain as a significant public health problem in the United States.” The resulting 2011 IOM report called for a cultural transformation in pain prevention, care, education, and research and recommended development of “a comprehensive population health-level strategy” to address these issues.1 In response to the report, the Assistant Secretary for Health, Department of Health and Human Services (HHS) asked the Interagency Pain Research Coordinating Committee (IPRCC) to oversee creation of this National Pain Strategy (NPS). More information on the IPRCC can be found HERE.
Read the report for the NPS at this link:
To convey the importance of the need to fund the NATIONAL PAIN STRATEGY (NPS) to improve the care for those of us who suffer from chronic pain, we are requesting you do your part to improve your situation.
A minimum of one letter or phone call to your local Representative and/or one letter to the editor of a local newspaper. Your participation is crucial to the success of the National Pain Strategy.
Need to know who your Representatives are? CLICK HERE
Below is an example of how to write a letter to your Representative and an example of how to write a letter to the Editor of your local newspaper.
Sample letter to your Representative and Letter to the Editor:
We support Patient-Centered Outcomes Research Institute (PCORI) and their efforts. Their mission:
“Our mandate is to improve the quality and relevance of evidence available to help patients, caregivers, clinicians, employers, insurers, and policy makers make informed health decisions. Specifically, we fund comparative clinical effectiveness research, or CER, as well as support work that will improve the methods used to conduct such studies”
Another organization we follow closely is the State Pain Policy Advocacy Network (SPPAN). They stay up-to-date on the latest policies per state directly affecting access to pain care treatments.
National Pain Strategy
There are 17 consumer organizations working together as part of the Consumer Pain Advocacy Task Force (CPATF) to make sure the National Pain Strategy will benefit all people affected by pain. The Consumer Pain Advocacy Task Force is a coalition of organizations with a sole purpose of:
“to work collectively to promote, support and monitor the implementation of the National Pain Strategy.” For additional information on the National Pain Strategy, the IOM report and the Consumer Advocacy Task Force, please view their press release and visit their web site, www.ConsumerPainAdvocacy.org.
KFSG works closely with the National Fibromyalgia & Chronic Pain Association (NFMCPA) and are actively involved in their advocacy program, Leaders Against Pain Action Network (LAPAN). Their unique training program has helped the organizers of our organization become effective advocates for quality healthcare on chronic pain conditions.
We strongly urge you to visit their and the other listed organizations to find out how you can become more involved in advocacy and how to have a stronger voice on legislative matters which directly affect you or your loved ones.
Below are some of the priority issues for KFSG:
Abuse Deterrent Formularies
Abuse Deterrent Formularies (ADF) is technology created to make it harder to abuse chronic pain medication by making it harder to tamper with the pills. KFSG supports the use of this technology as an option for chronic pain treatment.
An insurance practice which requires a patient to try the least expensive treatment first before approving a suggested treatment by the attending physician.
Cap the Copay
An effort to reduce the cost of specialty tier drugs.
To learn more on our priority issues, please go to any of the websites listed above. Occasionally, KFSG will issue a “Call to Action” urging the public to take action on a priority issue in chronic pain treatment and access to care. Please visit our page often to ensure you are part of a national effort of protecting your rights as a person with chronic pain conditions.