"We know where you're coming from"

Open Medicine Foundation

If you feel you have chronic fatigue syndrome, fibromyalgia, M.E., Systemic Exertion Intolerance Disease or just plain ol’ Yuppie FLU or care for someone who does, thanks to OMF researchers Dr. Davis and others, at http://www.openmedicinefoundation.org/ there is hope!!

(THIS IS NOT THE DISCREDITED PACE TRIAL)

Researchers know you are experiencing Cellular Danger Response.

“This work opens a fresh path to both understanding the biology of CFS and, more importantly to patients, a robust, rational way to develop new therapeutics for a disease sorely in need of them.” Robert Naviaux, PhD. Please click link below for a Q&A paper on this subject:

http://www.openmedicinefoundation.org/2016/09/09/updated-metabolic-features-of-chronic-fatigue-syndrome-q-a-with-robert-naviaux-md/

On this website you will find a button above his photo to link to Dr. Naviaux’s paper. It is the easiest way to find it to give to your doctor.

It is a dangerous and complex disease.

To see it at its most severe, look for Whitney Dafoe, the son of a world class genetics scientist out of Stanford, who has led the fight for acknowledgement and funding for research for us. http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html

There is a good chance we can get help in our own lifetimes!

OMF’s ME/CFS Scientific Advisory Board expanded its expertise welcoming David Bell, MD, ME/CFS expert clinician & Robert Naviaux, MD, PhD, University of California, San Diego, expert in metabolomics and mitochondria.

  • Funded and enabled an expanded validation study of Metabolomics (Naviaux et al. 2016) which now also includes genetics. Status: Completed the sample collection and testing is in progress. Date of completion estimated at June 2017.

“This work opens a fresh path to both understanding the biology of CFS and, more importantly to patients, a robust, rational way to develop new therapeutics for a disease sorely in need of them.” Robert Naviaux, PhD

You know why there are millions missing! You are one of them!

SPREAD THE WORD PLEASE AND PARTICIPATE PLEASE!

WE NOW KNOW WHAT CHRONIC FATIGUE IS.

Not what causes it, or right now how to cure or treat it, but the Open Medicine Foundation has done more in the last two years than all the years the medical people have had before to address it.

But we need action to help very specific researchers, and we need it now if at all possible!

I am asking you, begging you, pleading with you, to join me and others in tackling this insidious, expensive (think of the billions of dollars lost in productivity,) and personally devastating disease in three areas.

Donate directly to OMF

Whatever you can afford to donate to the OMF for Dr. Davis and Dr. Naviaux and their co-researchers to pay lab technicians, equipment and/or anything that will help move this precise research forward.

http://www.openmedicinefoundation.org/2016/12/22/a-special-holiday-message-from-dr-ron-davis/

Speak to your doctors

Use the scientific paper of Dr. Naviaux’s (16 pages, without charts printed) from his URL above, and offer it to him or her. I don’t know about you, but I am even more tired of being patted on the head by the majority of my health care people. Let’s get some real thought going in the medical community, perhaps then the NIH will support us more abundantly. Get onto the OMF newsletter subscription so you too have up to the minute information.

Help fundraise by suggesting ideas

Suggest, by email to myself at bearcat4900@gmail.com or to Sabrina Numann at fibromeetup@gmail.com fundraising ideas you have to donate to OMF and their research.

THANK YOU,

Ruth Linn,
Consuntant, Kentuckiana Fibromyalgia Support Group
bearcat4900@gmail.com

Upcoming Meetings

October 2017

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